No matter where you are in your GVHD journey
WE HAVE RESOURCES THAT CAN HELPWE HAVE RESOURCESTHAT CAN HELP
Learn about treatment options, better understand your condition, and advocate for yourself and others
One of the most critical things you can do after a bone marrow/stem cell transplant is monitor yourself for GVHD symptoms, even after Day 100. That’s when most chronic GVHD symptoms occur. Remember, you will have fewer check-ins with your transplant team as time goes on—so self-monitoring becomes even more important.
GET STARTED HERE
You can learn more about monitoring GVHD symptoms by selecting that topic on the menu below. There are other topics you may find helpful as well. Not seeing what you’re looking for? Check out GVHD Alliance-approved resources here.
Select any tab to see more.
Select any tab to see more.
Monitoring GVHD Symptoms
Monitoring GVHD SymptomsLearning About GVHD Treatment
Learning About GVHD Treatment Finding a Doctor for GVHD
Finding a Doctor for GVHDExploring Clinical Studies
Exploring Clinical StudiesSURVIVORSHIP PROGRAM
Find free support and services for after your (or your loved one’s) transplant
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more
Download on Google PlayDownload on the App Store12+ MONTHS POSTTRANSPLANT CARE GUIDE
See the most recent
recommendations for
posttransplant care
Download Guiderecommendations for
posttransplant care
CARING CONNECTIONS
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM
Talk with someone who knows what the transplant journey is like
VIRTUAL SUPPORT GROUPS
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD
Find psychologists, social workers, and counselors
PACES PROGRAM
Social workers provide patients and caregivers with one-on-one emotional support
SURVIVORSHIP PROGRAM
Find free support and services for after your (or your loved one’s) transplant
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more
Download on Google PlayDownload on the App Store12+ MONTHS POSTTRANSPLANT CARE GUIDE
See the most recent
recommendations for
posttransplant care
Download Guiderecommendations for
posttransplant care
CARING CONNECTIONS
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM
Talk with someone who knows what the transplant journey is like
VIRTUAL SUPPORT GROUPS
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD
Find psychologists, social workers, and counselors
PACES PROGRAM
Social workers provide patients and caregivers with one-on-one emotional support
LIVING WITH GVHD
Living with acute or chronic GVHD can be overwhelming. If you’re finding it difficult to cope, know that you are not alone—in fact, people who have GVHD have described it as a “full-time job.” GVHD can bring about challenges with:
- Physical functioning
- Fatigue
- General health
- Social functioning
- Psychological distress (depression, anxiety)
If you have either type of GVHD and are struggling, tell your health care provider. They may be able to refer you to other supportive care services. It’s helpful to have different types of professionals on your care team, which may include specialists for your physical symptoms as well as your mental health.
Below you’ll find a few different types of resources that may help along your GVHD journey.
LEARN ABOUT GVHD
Graft-versus-host disease, or GVHD, is a condition that can happen after a bone marrow/stem cell transplant. Donor cells (the graft) that a person (the host) has received attack that person’s organs and/or tissues. The donor cells do this because they mistake the host’s organs and/or tissues as a threat.
Thousands of people are diagnosed with
GVHD each year in the United States alone.
But the number of lives impacted is immeasurable.
Sometimes GVHD symptoms affect so many organs that people can’t live their lives the way they are used to. Even daily routines can be affected. In severe cases, GVHD can be life-threatening.
Choose an option below to learn more about the types and symptoms of GVHD.
There are 2 kinds of GVHD—acute GVHD (aGVHD) and chronic GVHD (cGVHD). People who receive bone marrow/stem cell transplants can develop either kind, or both.
- aGVHD usually occurs in the first 3 months after a bone marrow/stem cell transplant, but it can occur later as well
- It can affect the skin, the gut, and/or the liver
- The skin is usually the first organ affected
Symptoms of aGVHD may include
- A rash that looks like measles
- Nausea that doesn’t go away
- Vomiting
- Poor appetite
- Diarrhea that can cause severe abdominal pain and cramping
- Liver issues
- Jaundice
IS YOUR CHILD HAVING A BONE MARROW/STEM CELL TRANSPLANT?
These videos were created to help
kids know what to expect.
FIND RESOURCES FOR YOU
The GVHD Alliance is made up of 7 organizations dedicated to improving the lives of people with GVHD. Here you can find resources from our Alliance members: helpful web pages, downloads, videos, presentations, podcasts, and more. These resources can help you:
- Understand the risk of GVHD
- Recognize the symptoms of GVHD earlier
- Optimize discussions with health care teams
GET STARTED HERE
Select the filter tab to narrow your results. You can filter by resource type, topic, and symptom.
RESOURCES FOR GVHD ADVOCATES
Do you want to help the GVHD community? These tools were created for you to share with others and help get the word out on social media. Thank you for getting involved!
GVHD Caregiver Support Tool
English
Español
GVHD Signs and Symptoms
English
Español
GVHD Fact Sheet
English
Español
GVHD Patient Discussion Guide
English
Español
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GVHD Caregiver Support Tool
English
Español
GVHD Signs and Symptoms
English
Español
GVHD Fact Sheet
English
Español
GVHD Patient Discussion Guide
English
Español
September turns RED each year for Blood Cancer Awareness Month. Help raise awareness of blood cancer, its signs and symptoms, and its impact by using our sample messages and posts on your social media accounts.
