Websites
No matter where you are in your GVHD journey
WE HAVE RESOURCES THAT CAN HELPWE HAVE RESOURCESTHAT CAN HELP
Learn about treatment options, better understand your condition, and advocate for yourself and others
GET STARTED HERE
You can learn more about monitoring GVHD symptoms by selecting that topic on the menu below. There are other topics you may find helpful as well. Not seeing what you're looking for? Check out GVHD Alliance-approved resources here.
Select any tab to see more.
Select any tab to see more.
Monitoring GVHD Symptoms
Learning About GVHD Treatment
Finding a Doctor for GVHD
Exploring Clinical Studies
EMOTIONAL HEALTH AND SUPPORT GROUPS
SURVIVORSHIP PROGRAM 
Find free support and services for after your (or your loved one’s) transplant
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more
12+ MONTHS POSTTRANSPLANT CARE GUIDE
See the most recent recommendations for posttransplant care
Download Guide
CARING CONNECTIONS
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM
Talk with someone who knows what the transplant journey is like
ON THE R.I.S.E. GVHD AMBASSADOR PROGRAM
Sponsored by the Meredith A. Cowden Foundation
Schedule an educational session with real patients living with GVHD to talk about the journey.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
Email GVHD.rise@revhealth.com for more information.
VIRTUAL SUPPORT GROUPS
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD
Find psychologists, social workers, and counselors
PACES PROGRAM
Social workers provide patients and caregivers with one-on-one emotional support
SURVIVORSHIP PROGRAM
Find free support and services for after your (or your loved one’s) transplant
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more
12+ MONTHS POSTTRANSPLANT CARE GUIDE
See the most recent recommendations for posttransplant care
Download GuideCARING CONNECTIONS
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM
Talk with someone who knows what the transplant journey is like
ON THE R.I.S.E. GVHD AMBASSADOR PROGRAM
Sponsored by the Meredith A. Cowden Foundation
Schedule an educational session with real patients living with GVHD to talk about the journey.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
Email GVHD.rise@revhealth.com for more information.
VIRTUAL SUPPORT GROUPS
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD
Find psychologists, social workers, and counselors
PACES PROGRAM
Social workers provide patients and caregivers with one-on-one emotional support
LIVING WITH GVHD
Living with acute or chronic GVHD can be overwhelming. If you’re finding it difficult to cope, know that you are not alone—in fact, people who have GVHD have described it as a “full-time job.” GVHD can bring about challenges with:
- Physical functioning
- Fatigue
- General health
- Social functioning
- Psychological distress (depression, anxiety)
If you have either type of GVHD and are struggling, tell your health care provider. They may be able to refer you to other supportive care services. It’s helpful to have different types of professionals on your care team, which may include specialists for your physical symptoms as well as your mental health.
Below you’ll find a few different types of resources that may help along your GVHD journey.
LEARN ABOUT GVHD
Graft-versus-host disease, or GVHD, is a condition that can happen after a bone marrow/stem cell transplant. Donor cells (the graft) that a person (the host) has received attack that person's organs and/or tissues. The donor cells do this because they mistake the host's organs and/or tissues as a threat.
Thousands of people are diagnosed with
GVHD each year in the United States alone.
But the number of lives impacted is immeasurable.
Sometimes GVHD symptoms affect so many organs that people can't live their lives the way they are used to. Even daily routines can be affected. In severe cases, GVHD can be life-threatening.
Choose an option below to learn more about the types and symptoms of GVHD.
There are 2 kinds of GVHD—acute GVHD (aGVHD) and chronic GVHD (cGVHD). People who receive bone marrow/stem cell transplants can develop either kind, or both.
- aGVHD usually occurs in the first 3 months after a bone marrow/stem cell transplant, but it can occur later as well
- It can affect the skin, the gut, and/or the liver
- The skin is usually the first organ affected
Symptoms of aGVHD may include
- A rash that looks like measles
- Nausea that doesn’t go away
- Vomiting
- Poor appetite
- Diarrhea that can cause severe abdominal pain and cramping
- Liver issues
- Jaundice
FIND RESOURCES FOR YOU
Here you can find resources from our Alliance members, including
Presentations
Videos
Downloads
Podcasts
These resources can help you understand the risk of GVHD, recognize the symptoms of GVHD earlier, and optimize discussions with health care teams.
RESOURCES FOR GVHD ADVOCATES
Do you want to help the GVHD community? These tools were created for you to share with others and help get the word out on social media. Thank you for getting involved!
GVHD Caregiver Support ToolEnglish
Español
GVHD Signs and SymptomsEnglish
Español
GVHD Day 100 MilestoneEnglish
Español
GVHD Fact SheetEnglish
Español
GVHD Patient Discussion GuideEnglish
Español
GVHD Day 100 MilestoneEnglish
Spanish version coming soon!
GVHD Nutrition & YouEnglish
Español
September turns RED each year for Blood Cancer Awareness Month.
Help raise awareness of blood cancer, its signs and symptoms, and its impact by using our sample messages and posts on your social media accounts.GVHD Caregiver Support ToolEnglish
Español
GVHD Signs and SymptomsEnglish
Español
GVHD Day 100 MilestoneEnglish
Español
GVHD Fact SheetEnglish
Español
GVHD Patient Discussion GuideEnglish
Español
GVHD Day 100 MilestoneEnglish
Spanish version coming soon!
GVHD Nutrition & YouEnglish
Español
September turns RED each year for Blood Cancer Awareness Month.
Help raise awareness of blood cancer, its signs and symptoms, and its impact by using our sample messages and posts on your social media accounts.
WE FOCUS ON THE PARTS OF GVHD WE DON’T OFTEN TALK ABOUT
You’ll hear from people with GVHD and caregivers alike.
MARROW MASTERS PODCAST
Season 16 of the Marrow Masters podcast focuses on the best tips for dealing with cGVHD. Top-notch health care professionals will share their compassion, best advice, insight, and caregiving tips regarding cGVHD. This season will offer education, tried and true solutions, stories of hope, and more.
LISTEN NOWADVOCATE SPOTLIGHT
John York is a well-known actor who plays Mac Scorpio on General Hospital. In December 2022, John was diagnosed with myelodysplastic syndrome, or MDS, and smoldering multiple myeloma—2 blood and bone marrow disorders. In December 2023, he received a blood stem cell transplant. John is now back at work and is a great advocate of NMDP and the GVHD Alliance.
Watch John's Story on YouTubeConnect With John on X to Read His GVHD Messages of Hope
