No matter where you are in your GVHD journey

WE HAVE RESOURCES THAT CAN HELPWE HAVE RESOURCESTHAT CAN HELP

Learn about treatment options, better understand your condition, and advocate for yourself and others

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One of the most crucial things you can do after a bone marrow/stem cell transplant is monitor yourself for GVHD symptoms, even after Day 100. That’s when most chronic GVHD symptoms occur.
Remember, you will have fewer check-ins with your transplant team as time goes on—so self-monitoring becomes even more important.

GET STARTED HERE

You can learn more about monitoring GVHD symptoms by selecting that topic from the menu below. There are other topics you may find helpful as well. Not seeing what you're looking for? Check out GVHD Alliance–approved resources here.

Select any tab to see more.

Monitoring GVHD Symptoms
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Finding a Doctor for GVHD
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Exploring Clinical Studies
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EMOTIONAL HEALTH AND SUPPORT GROUPS

SURVIVORSHIP PROGRAM Right-facing arrow icon
Find free support and services for after your (or your loved one’s) transplant.
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more.
download on google playdownload on the app store
Connecting Patients Through Cancer Buddy Support
CancerBuddy
The National Bone Marrow Transplant Link (nbmtLINK) Cancer Buddy Support Group offers bone marrow, stem cell, and CAR-T recipients—along with their caregivers and families—a space to receive emotional support, share experiences, and access practical resources through peer connections. The program includes a dedicated GVHD subgroup, led by Jennifer Gillette, providing tailored guidance and a supportive community for those navigating the complexities of GVHD.
download on google playdownload on the app store
CARING CONNECTIONS Right-facing arrow icon
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS Right-facing arrow icon
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM Right-facing arrow icon
Talk with someone who knows what the transplant journey is like
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ON THE R.I.S.E. GVHD AMBASSADOR PROGRAM
Sponsored by the Meredith A. Cowden Foundation
Schedule an educational session with real patients living with GVHD to talk about the journey.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
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Email GVHD.rise@revhealth.com for more information.
VIRTUAL SUPPORT GROUPS Right-facing arrow icon
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD Right-facing arrow icon
Find psychologists, social workers, and counselors
PACES PROGRAMRight-facing arrow icon
Social workers provide patients and caregivers with one-on-one emotional support
SURVIVORSHIP PROGRAM Right-facing arrow icon
Find free support and services for after your (or your loved one’s) transplant.
MY NMDP
Use this app to connect with the transplant community, track your symptoms, and more.
download on google playdownload on the app store
Connecting Patients Through Cancer Buddy Support
CancerBuddy
The National Bone Marrow Transplant Link (nbmtLINK) Cancer Buddy Support Group offers bone marrow, stem cell, and CAR-T recipients—along with their caregivers and families—a space to receive emotional support, share experiences, and access practical resources through peer connections. The program includes a dedicated GVHD subgroup, led by Jennifer Gillette, providing tailored guidance and a supportive community for those navigating the complexities of GVHD.
download on google playdownload on the app store
CARING CONNECTIONS Right-facing arrow icon
One-on-one phone support from survivors and caregivers
GVHD SUPPORT GROUPS Right-facing arrow icon
Connect with the transplant community and find tools that can help with your journey
PEER CONNECT PROGRAM Right-facing arrow icon
Talk with someone who knows what the transplant journey is like
gvhd icon
ON THE R.I.S.E. GVHD AMBASSADOR PROGRAM
Sponsored by the Meredith A. Cowden Foundation
Schedule an educational session with real patients living with GVHD to talk about the journey.
Understand GVHD, treatment options, managing GVHD with your care team, and ways to take care of yourself day-to-day.
gvhd icon
Email GVHD.rise@revhealth.com for more information.
VIRTUAL SUPPORT GROUPS Right-facing arrow icon
Social workers lead topic-specific discussions with a group of transplant survivors
DIRECTORY OF MENTAL HEALTH PROVIDERS FAMILIAR WITH GVHD Right-facing arrow icon
Find psychologists, social workers, and counselors
PACES PROGRAMRight-facing arrow icon
Social workers provide patients and caregivers with one-on-one emotional support
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NBMTLINK FOCUSES ON THE PARTS OF GVHD WE DON'T OFTEN TALK ABOUT

Join us for season 19 of the Marrow Master Podcast, called “Thriving Despite Chronic Graft Versus Host Disease.”

LISTEN NOWRed right-facing arrow icon

Join us for a Power Panel webinar, featuring top GVHD experts from Memorial Sloan Kettering Cancer Center as they discuss “Symptoms & Signs of Chronic Graft Versus Host Disease.”

LISTEN NOWRed right-facing arrow icon

LIVING WITH GVHD

Living with acute or chronic GVHD can be overwhelming. If you’re finding it difficult to cope, know that you are not alone—in fact, people who have GVHD have described it as a “full-time job.” GVHD can bring about challenges with:
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  • Physical functioning
  • Fatigue
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  • General health
  • Social functioning
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  • Psychological distress (depression, anxiety)
If you have either type of GVHD and are struggling, tell your health care provider. They may be able to refer you to other supportive care services. It’s helpful to have different types of professionals on your care team, which may include specialists for your physical symptoms as well as your mental health.
Below you’ll find a few different types of resources that may help along your GVHD journey.

LEARN ABOUT GVHD

Graft-versus-host disease, or GVHD, is a condition that can happen after a bone marrow/stem cell transplant. Donor cells (the graft) that a person (the host) has received attack that person's organs and/or tissues. The donor cells do this because they mistake the host's organs and/or tissues as a threat.

Thousands of people are diagnosed with
GVHD each year in the United States alone.
But the number of lives impacted is immeasurable.

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Sometimes GVHD symptoms affect so many organs that people can't live their lives the way they are used to. Even daily routines can be affected. In severe cases, GVHD can be life-threatening.

Choose an option below to learn more about the types and symptoms of GVHD.

There are 2 kinds of GVHD—acute GVHD (aGVHD) and chronic GVHD (cGVHD). People who receive bone marrow/stem cell transplants can develop either kind, or both.
  • aGVHD usually occurs in the first 3 months after a bone marrow/stem cell transplant, but it can occur later as well
  • It can affect the skin, the gut, and/or the liver
  • The skin is usually the first organ affected

Symptoms of aGVHD may include

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  • A rash that looks like measles
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  • Nausea that doesn’t go away
  • Vomiting
  • Poor appetite
  • Diarrhea that can cause severe abdominal pain and cramping
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  • Liver issues
  • Jaundice

Understanding the Types of GVHD Treatments

GVHD can be managed in several ways, and knowing your options can help guide care decisions. Always talk with your doctor about treatment options that may be right for you.

Lines of Treatment
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Immunosuppressive Therapies
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Targeted Therapies
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Blood-based or Procedural Treatments
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GVHD Treatment Resources
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FIND RESOURCES FOR YOU

Here you can find resources from our Alliance members, including
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Websites
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Presentations
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Videos
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Downloads
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Podcasts
These resources can help you understand the risk of GVHD, recognize the symptoms of GVHD earlier, and optimize discussions with health care teams.

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IS YOUR CHILD HAVING A BONE MARROW/STEM CELL TRANSPLANT?

These videos were created to help kids know what to expect.

RESOURCES FOR GVHD ADVOCATES

Do you want to help the GVHD community? These tools were created for you to share with others and help get the word out on social media. Thank you for getting involved!
GVHD Caregiver Support ToolGVHD Caregiver Support Tool
English
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Español
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GVHD Signs and SymptomsGVHD Signs and Symptoms
English
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GVHD Day 100 MilestoneGVHD Day 100 Milestone
English
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GVHD Fact SheetGVHD Fact Sheet
English
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Español
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GVHD Patient Discussion GuideGVHD Patient Discussion Guide
English
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Español
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GVHD Day 100 MilestoneGVHD Day 100 Milestone
English
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Spanish version coming soon!
GVHD Fact SheetGVHD Nutrition & You
English
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Español
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February 17 is GVHD Day!

Help raise awareness of the signs and symptoms by using our sample messages and posts on your social media accounts.
GVHD Caregiver Support ToolGVHD Caregiver Support Tool
English
Download icon
Español
Download icon
GVHD Signs and SymptomsGVHD Signs and Symptoms
English
Download icon
Español
Download icon
GVHD Day 100 MilestoneGVHD Day 100 Milestone
English
Download icon
Español
Download icon
GVHD Fact SheetGVHD Fact Sheet
English
Download icon
Español
Download icon
GVHD Patient Discussion GuideGVHD Patient Discussion Guide
English
Download icon
Español
Download icon
GVHD Day 100 MilestoneGVHD Day 100 Milestone
English
Download icon
Spanish version coming soon!
GVHD Fact SheetGVHD Nutrition & You
English
Download icon
Español
Download icon

February 17 is GVHD Day!

Help raise awareness of the signs and symptoms by using our sample messages and posts on your social media accounts.
Stay Informed icon

Stay informed with the latest from the American Society for Transplantation and Cellular Therapy (ASTCT).

Their new white paper highlights the impact of multidisciplinary clinics on patient care and team coordination.

Post Transplant Care Guide icon

Posttransplant Care Guide

See the most recent recommendations for posttransplant care.